Food, IBD and vision problems

As I’m writing this post I’m wearing an eye patch. I never thought IBD could lead to vision problems and even worse, I never thought my medical doctor wouldn’t know about it. It seems like the mainstream medical community haven’t caught up on the science regarding IBD. This lead me to try other things that I wouldn’t think of before and I’m getting better every single day as a result. Today I want to write a little about my very slow journey towards remission after battling Ulcerative Colitis for the last two and a half years, so stick around if you want to know more about that.

I’ve written and made videoes about my vision problems before so I won’t go too deep into those topics, but I need to mention them briefly in order to explain why I’ve chosen to step out of the mainstream medical community to help my self.

After being vegan for about 9 months I started having vision problems. The symptoms reversed after a few weeks and then about 6 months after that I was diagnosed with Ulcerative Colitis. After seeking help from my clinical nutritionist, my colon specialist and my medical doctor I just kept getting worse. I also read many blog posts from a lot of people who said that after a while their medication stopped working, which often lead to the removal of their colon. Now, I’ve been a fan of Unnatural Vegan for as long as I’ve been vegan, and still am (!), and I’ve had the same mentality as her when it comes to health. It wasn’t until I got sick myself and kept getting worse that I changed my mind about following what the mainstream health practitioners say.

It all started when I contacted Pamela Popper (“Pam”) from the Wellness Forum. She told me that Ulcerative Colitis, and other IBDs, are pretty much foodborne illnesses. I then told her my story. Among other things, I said that my colon specialist informed me that smoking is good for colitis. She immediately stopped me in my tracks and said: “That is not true Kim”. I was then conflicted; Pam, who I had paid to help me, said something different than my colon specialist had told me. One of them had to be wrong. So I checked out the Journal of Norwegian Medical Association and lo and behold, they stated the same as my colon specialist. When I looked at the data they referred to, however, it said in the research introduction that smoking can have a “possible beneficial effect in ulcerative colitis”. It made me angry that a well established medical journal interpreted a “possible beneficial effect” in the research data to “smoking has a clear link to ulcerative colitis and occurs less frequently in this group”. Now, I’m not a researcher or medical specialist but after seeing this I started taking Pam much more seriously.

After following her IBD program for about 7 weeks now I have gone from going to the bathroom 20 times a day to 1-3 times. I’m still not in remission but I keep getting better all the time. I look at it as a “two steps forward and one step back”-process. If I ever get in remission and can eat somewhat normally again I would need a revamp on my blog and YouTube-channel because I need to be gluten-free. Along with my colon specialist, clinical nutritionist and medical doctor, Pam also assured me that being vegan had nothing to do with my disease and she is the only person who has gotten me better in two and a half years. So, according to Pam I can keep being vegan if I want to, and after seeing such good results so far, I believe her.

Another thing is getting double vision again. When I talked to Pam about it, she mentioned that it is quite normal for IBD-patients to get eyesight problems. NOBODY in the medical community has mentioned this to me. I’ve gone through a spinal tap, x-rays, blood samples, multiple visits to the eye doctor, I was even put in the same ward as the MS-patients (which was scary as hell). Noone found anything! Then this woman on a different continent says to me “Yeah, vision problems are common in IBD-patients”. I did a quick Google-search and lo and behold, the Crohns and Colitis foundation have a section about eye complications regarding IBD patients. Having gone through all of that and not one person in the medical field could connect the dots regarding my vision problems was infuriating!

These two things, the smoking claim and non-existent vision connection, have made me doubt the medical system I’m surrounded with as of today. If this IBD-program from Pam works I will write an in-depth article regarding all of this. I will also totally start my cooking-channel/blog posts again 🙂

 

❤ kim

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